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Post by salemgazettepres on Jun 6, 2007 14:59:41 GMT -5
Hi everyone, I just wanted to take a second and let you know about the auction that I am holding on Ebay to benifit the NODCC (National Organization of Disorders of the Corpus Callosum) in honor of my six year old God Daughter Emily who has Complete Agenisis of The Corpus Callosum. Agenesis of the corpus callosum (ACC) is a birth defect in which the structure that connects the two hemispheres of the brain (the corpus callosum) is partially or completely absent. ACC can occur as an isolated condition or in combination with other cerebral abnormalities, including Arnold-Chiari malformation, Dandy-Walker syndrome, Andermann syndrome, schizencephaly (clefts or deep divisions in brain tissue), and holoprosencephaly (failure of the forebrain to divide into lobes.) Girls may have a gender-specific condition called Aicardi's syndrome, which causes severe mental retardation, seizures, abnormalities in the vertebra of the spine, and lesions on the retina of the eye. ACC can also be associated with malformations in other parts of the body, such as midline facial defects. The effects of the disorder range from subtle or mild to severe, depending on associated brain abnormalities. Intelligence may be normal with mild compromise of skills requiring matching of visual patterns. But children with the most severe brain malformations may have intellectual retardation, seizures, hydrocephalus, and spasticity. If you would like to check out my auction please go to: search.ebay.com/_W0QQsassZbobili4everQQhtZ-1 . Thanks for looking, Michele
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Post by Steve on Jun 7, 2007 11:52:41 GMT -5
Just checked out the auction items, Michele. You've got some nice things up for bid - esp. liked the ones of/from Lauren Koslow.
This is a great thing you're doing. Best of luck with the auction!
Steve
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Post by salemgazettepres on Jun 8, 2007 9:12:52 GMT -5
Steve,
Thanks so much. It breaks my heart that my God Daughter can only say 4 words. I don't want another family to go through what hers is. She can sign thanks to a little girl in her kindergarten who is autistic and can not speak. She taught Emily to sign so they could talk.
Michele
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Post by Steve on Jun 8, 2007 11:54:37 GMT -5
That is so sad to hear, Michelle. It's truly a great thing you're doing.
Best of luck with the auction!
Steve
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